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Popular pages
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Myositis Support and Understanding, Patient-Centered Nonprofit
Myositis Support and Understanding works to improve the quality of life for all impacted by myositis and is an all-volunteer, patient-led 501(c)(3) nonprofit.
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Types of Myositis - Myositis Support and Understanding
Inflammatory Myopathies, Myositis, include Polymyositis, Dermatomyositis, Necrotizing Myopathy, and sporadic Inclusion Body Myositis.
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How do I explain myositis? - Myositis Support and Understanding
Explaining myositis (Idiopathic Inflammatory Myopathy) and how it affects our lives is difficult. There isn’t a simple, clear-cut answer for us. Myositis affects each person differently including chan...
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How to diagnose Myositis? - Myositis Support and Understanding
Diagnosing Myositis, Inflammatory Myopathies, usually includes lab work, muscle or skin biopsy, EMG, MRI, and nerve conduction studies. It is not uncommon to be misdiagnosed due to the rarity of the d...
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What is Myositis? - Myositis Support and Understanding
Idiopathic Inflammatory Myopathies include Dermatomyositis, Polymyositis, Inclusion Body Myositis, immune-mediated necrotizing myopathy, antisynthtase syndrome.
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Myositis Treatments - Myositis Support and Understanding
Myositis is an incurable rare disease with no FDA-approved treatments. Off-label use of medications can help some patients, with often life-altering side effects.